We've been home a week now and LiLi is back to normal. She's still swollen a little, but is playing , jumping and running around like normal. We are so happy with her progress. Although, I was hoping after having such a rough week that she would want to take naps, but that's not happening. She goes strong all day.
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Her eyes were just starting to open before
we left Dallas. She was so happy |
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| Craziness with Andrew. |
We can definitely see the difference in her forehead and somewhat in her eyes. She has an appointment on March 28th with an opthamologist. We were told a few months ago that she may need eye muscle surgery, but the doctor wanted to wait until the cranio surgery was complete and see if that helped. Here are a few pictures of her.
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It is starting to warm up so we
can play in the yard. |
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| She loves the computer. |
WOW! She looks amazing! I am so glad things are going well! Please keep us updated on her progress! xoxo, Misty
ReplyDeletewe will keep praying for your little girl. thank you for sharing her and your journey with us!
ReplyDeleteI just came upon your blog while searching for Craniosynostosis and CVR surgery. My daughter is having her 2nd surgery on April 14 and she is 3. I'm really worried about her with this surgery because she is older. We haven't talked to her about the surgery or even going to the hospital. How did LiLi do in the hospital? Did you talk to her about going to the hospital and getting surgery? I'm so nervous! :( I would love to hear from you. You can email me at beccadmk@yahoo.com Thanks so much, Becca
ReplyDeleteI'm not sure why my blogger profile isn't showing up but you can read through my blog at www.harberclan.blogspot.com or my daughter's CaringBridge page at www.caringbridge.org/visit/juliannaharber
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